A Quiet Walk on Lantern Festival

After 6 busy weeks in the Philippines, I am back in very quiet Jimei. Blissfully quiet for now, except for the occasional firecrackers in the distance, as the students are not back from their holiday yet.

Though I miss my son already, I am thankful for the quiet walk I had this afternoon, something that I did not have a chance to do back home.

Every now and then I need to be alone with my thoughts, and today I got the chance.

Here’s what the campus looks like for now.

No basketball games

The cafeteria is closed

Happy Lantern Festival!🎉🏮

T.

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Beautiful Alona Beach, Bohol

The first time I went to Bohol was in 2002 to attend a Young Writers’ Conference. It was a very quiet place then. I don’t remember seeing tourists.

Bohol looks so different now.

Here are photos of Alona Beach in Panglao, Bohol, Philippines at different times of the day.

Noon time when we arrived

sunset

early morning

early morning

sunrise

Have a lovely week! 💕

T.

On Autism and Feeling Left Out

Today I read an article written by a mom who says that as a parent of a child with autism, she feels isolated. And one parent commented that she feels the same, that nobody invites her son to anything, and so she never gets invited to anything either.

I am not bothered that nobody invites Eli to birthday parties. For one, I cannot stand the noise of kids for so long. For another, Eli cannot stand the sound of screaming or crying children either. He is more comfortable around older children or adults. However I do throw a birthday party for him and for the last three years, I had McDonald’s in my city organize it, the first year at their store and the last two years at his special education school. His classmates had so much fun, especially when the mascot came out. This year was the noisiest party ever, but Eli was fine with it because he already knows his classmates and teachers, and the mascot no longer scares him. I had a headache from all the noise, but seeing Eli so calm amid the raucous, and his classmates, most of whom are minimally verbal, participating in the games and so excited to see the mascot, was fulfilling.

For the last three years, I always gave a few party bags from Eli’s party to the kids with special needs at the public school special needs center, and they were always happy to get stuff from McD. Their smiles and thank-you’s were enough to make me happy.

I understand some parents’ feelings of isolation, but I guess what I want to say is, we don’t have to feel this way. We don’t have to feel sorry for ourselves because we can do something about this. Instead of waiting for people to reach out to us, we can take the initiative. And we don’t have to reach out to those who cannot accept our children’s condition, we really do not need them in our lives. There are people out there who not only understand and accept our autistic children for who and what they are but also appreciate them for their specialness and our struggles at raising such children.

It is very difficult for Eli to have friends save for his two cousins and my cousins’ son and daughter. Neurotypical kids will always see him as strange, and I don’t blame them. They are children. I have witnessed several times how Eli tried to go near such children, and how they looked at him and moved away from him. It hurt me, but I’m almost sure it disappointed him more. But this is reality. In time he will learn what everyone of us should learn, not everyone can be a friend. Not everyone can be accepting of who we are, but there are those who do care, and they are the ones that matter. There is no need to be friends with people who are embarrassed by usus. They are not worth our our time or energy. Remember there ARE people who will be very grateful for our time and attention. We should give it to them instead.

Life is not all roses, even for neurotypical people. We can only try to live it the best we can for ourselves and for our children on the spectrum.

Fear, Fascination and Autism

There are many things that can make Eli, my 8-year-old son on the spectrum , happy and very few that terrify him. To neurotypical adults, it would seem silly to be scared by the sound of a hair or hand dryer, or a blender or coffee grinder or a drill, but these are sounds that have a different effect on my son and other autistic kids like him. Thankfully, the noise from crowds don’t bother him anymore, and the hair dryer we have at home does not bother him as much as it did before. If we use the coffee grinder, he would just leave the kitchen.

Still there’s so much I envy my son for — one of which is his lack of fear of things that terrify most people I know, from tiny creatures like cockroaches or spiders to pythons. When we went to a zoo in Bohol last week,our guide showed us this yellow python. Thinking my husband was holding Eli’s hand, I couldn’t help screaming when I saw him already inside the cage with the guide. He was the only one inside the cage with the guide who showed him how to pet this beautifully yellow python. None of us adult tourists dared to go in, but Eli did and seemed to really enjoy touching the snake.

Eli also loves the ocean. Unfortunately he doesn’t know how to swim yet. Just like me and my husband, Eli can sit (or stand) on the beach for a long time just looking at the waves or the horizon. The ocean is mesmerizing. He is most calm when he is on the beach. On our last evening in Bohol, he and his father watched the sunset until it got too dark to see anything on the ocean, but I guess he was listening to the sound of the waves, and that too is mesmerizing.

But Eli has no sense of the danger of the ocean especially for people who cannot swim. And if no one is watching him, he will just keep walking towards the water. From what I’ve read, most autistic kids and adults are drawn to water, and in fact when an autistic person goes missing, the first area rescuers would search is a body of water.

The “fearlessness” of our autistic kids may be admirable sometimes, but we also have to remember that fear is one way we, humans, protect ourselves from danger, and if our “fearless” kids are not aware of the dangers that their fascination with certain things poses, it will not be good for them.

Have a lovely and safe Sunday! 💕

T.